What is PFIC?! and How did we find out Avery has it?
Avery is diagnosed with a rare genetic liver disorder called PFIC or Progressive Familial Intrahepatic Cholestatis.
Avery is diagnosed with a rare genetic liver disorder called PFIC or Progressive Familial Intrahepatic Cholestatis.
Can’t believe we have a one year old! It seems like yesterday, we were just announcing that we are pregnant! How time flies!! As pop-culture fans, we opted for a pop culture inspired birthday for Avery. We were originally going to go for a Comic Con Birthday but someone mentioned “ONEderwoman” and I got hooked!
PRODROMAL labour started on Tuesday, Nov. 17. I had consistent and timeable non-progressive contractions that starts at 1am and ends at 6am (Every 5 minutes, for 30-60 seconds). I was in and out of the hospital that week.
Yes, “it’s true?” as what my mom said during our pregnancy reveal. I am officially 13 weeks pregnant (depending on when I am actually going to post this) but if you are part of our immediate family and friends, you probably already know. The secret is out! WOHOO WOHOO!
Well, It was a cold and windy day in Taipei, Taiwan and a stubborn girl, me, did not bring a sweater because google weather said it was 20 degrees Celsius. 20 Celsius is usually hot! It was so darn cold that day!
I need to write this because i feel like I am going to burst! I am in love. swoon-worthy, butterflies in my stomach, can’t stop thinking about it IN LOVE. When I was younger, I read myself to sleep. It started with short stories; myths and legends of the places in my birth country. Then,…
Our first time experience at KOA in Canada was unexpected!
It was her first beach experience this year. We woke up at 6:30am. Actually, scratch that. She woke us up at 6:30am. With all the preparation, we didn’t get to Jackson Point (an hr and a half away from where we are) until 10:30am. There were already a lot of people and for some reason,…
Are you a Toronto local? Have you ever been to Centre Island? It is such a great family friendly place to take your kiddos to. We were aiming to go there early but due to unforeseen circumstance (kids being kids), we ended up a tad late (still early enough for the rush). We drove from…
A few years ago, I used to be a preschool teacher. I would create an on the spot social stories with the kiddos I was with and it became a routine The children enjoyed it so much that everyday, they would ask for a story. I thought to myself, I should make my own book!…
I started a new job last week. I’ve been so excited for this one because it’s something I have truly been wanting to do. Developing programs, individualized plans and supporting kiddos to build and enhance their skill is a passion of mine. I do that already as an Early Childhood Educator (ECE’s do a multitude…
My mom’s photo of me, as a baby, is still evident in our photo books and here I am, losing photos over photos.
We weren’t an advocate for Rare Disease Day until Avery was diagnosed with a rare disease.
I never imagined this moment. Lying beside Avery, while she is sleeping soundly. Kissing her forehead and smelling her as she sleeps. I have a family of my own. I just finished watching the show called Inventing Anna, and there was a scene when Vivian (the journalist) gave birth. Her baby cried. I don’t remember…
This Valentines Day, let’s go back in time as I tell you how I met Avery’s dad (a.k.a. Chris).